Showing posts with label UVA. Show all posts
Showing posts with label UVA. Show all posts

Tuesday, December 4, 2012

We're Hoos...How 'Bout You?

Do you have a special date night splurge with your husband? Is there something out of the ordinary (other than your home, children and family life) that you two share?

A hobby, sport, activity or passion that brings the two of you together...not the run-of-the-mill normal "living" kind of things.


For us, it's football. More specifically, college football.


You see, we've grown up in a college town.


Charlottesville, Virginia...home to The University of Virginia

We are Virginia Cavaliers fans, through and through.


We've known how to "paint the town orange" since we can remember. Well, It probably took a little longer for my country boy to come around as a Wahoo fan, seeing he spent so much of his childhood in the country, chasing fireflies and playing in the creek beds. ;)

Nevertheless, he is a HUGE fan, now!


I grew up watching UVA football games and I even had the privilege of going the women's basketball games with my dad.

My childhood dream was to play college basketball for UVA and attend the UVA Law School.


Twenty plus years later, I am an even bigger fan. My husband and I have found out that we enjoy watching the games TOGETHER. (If you run to the TV to catch the game when your man is not even home, you are, without a doubt a football fan! Yep, that's me!)


What we love even more than watching the game on TV is going TO THE GAMES...oh, my!

It's our "splurge".

A seemingly frivolous thing that brings us together...cheering on the home team, jumping with excitement when they score a touchdown and singing the "Good Ole' Song".

Whatever your splurge is with your "love" make sure that you don't get so busy living life, raising a family and paying the bills that you forget to do that special thing. Take the time to work on and build a strong marriage...one day those kids are going to be "raised" and on their own and you'll be left staring into the eyes of a stranger if you don't build your relationship now.



If you don't have something special, then make up something that can be your own...it doesn't even have to be expensive as long as it's just the two of you, together and enjoying your special friendship.

We even enjoy going for a drive on a pretty day or a warm evening, winding our way along back country roads, taking advantage of an occasional stop sign to lean over a sneak a passionate kiss or two...Or three. ;). It's those kind of things that will bind your hearts together and strengthen your marriage.

Living purposefully goes beyond raising your children...it's also what will make a fulfilling, lasting marriage.



Thursday, October 6, 2011

White Coats & High Hopes


White Coats & High Hopes

So, here I sit in one of the best hospitals in the country
(and likely the world) and what is the prevailing thought? 

 "Life is so disposable."        Or better yet... It is but a vapor.

 There are hundreds of people sitting here in the waiting room to get help for whatever ails them and the first stop is blood work.  Walk up to the counter, "Hilton Building, Desk C" and you are greeted by a smiling, cheerful face.  "Wow" I think to myself.  After all, it's 8am, I'm nervous because I don't know what lies before me, I'm probably patient number 473 this morning alone and this is a welcoming stop on my journey.  Perhaps this is just a really sweet lady!

Blood work done.  Onward to my next appointment.  As we tunnel our way through the underground walkways (aka "subways") toward the main lobby, I feel like I'm entering a beautiful hotel lobby with 40 foot ceilings, marble floors, beautiful art and a pleasant grand piano filling the air with lovely music.

 "Shall we just sit here, drink in the atmosphere and lose ourselves in the music?"  Ahh, no- we didn't travel close to a thousand miles for atmosphere!  I mean it could look like a sanitarium and it wouldn't matter if they did what I needed done!

Appointment after appointment, that lady from the "Hilton Building, Desk C" must have sent her sisters to take care of me because they were ALL so sweet and lovely.  I'm not joking, even the men were pleasant.  We must be on another planet!  Are we still in America?  And "Up North" for goodness sakes!  Everybody knows that "all Northerners are rude." (At least that's what our mamas told us)

No, no, we were in the right place but they must have one of those Wal-Mart kind of morning "pep rallies" before the doors open at 6am for patients, to get everyone motivated and happy. 

                          ************

With all of that being said, I hope I have set the atmosphere quite perfectly for you.  I ended up in "The" Liver Specialist's office by Wednesday.  The bulk of tests had been done and it was time for some serious observation.  We sat and talked with him as he sorted files, read records, asked questions and made notes.  He was a pleasant man, relaxed, calculated and very knowledgeable.  After examining me, it was time for us to ask questions.  We had many fears- my doctors at UVA helped us to understand how serious my condition was, no doubt so that we would handle it seriously and follow their treatment plan.  I had Stage 3 Liver Disease.  They wanted to, "save my liver" and avoid the need for a transplant.  Along with this, we had been studying up on this disease and knew allot of the "Ins and outs" from our reading.



So, what did he say?

He did confirm that I have both PBC (Primary Biliary Cirrhosis) and AIH (Autoimmune Hepatitis). 
They have ordered the actual tissue samples from my last two biopsies and will have them looked at by Mayo.  (He didn't see the point in taking another biopsy)  He believes that with a little different approach, as far as my medicine goes, we can get to the place that we can manage these diseases and the damage they are having on my liver. There are no dietary changes that will aid in managing the effects of this disease on my liver.  I don't need to worry about a transplant: 25 years ago PBC was the leading reason for a liver transplant but with the advancement of medicine and treatment options, it is rare for a PBC patient to need a transplant (even at Stage 4).
Long term, things look good for me.  I will still have the difficulty of day-to-day pain and fatigue from the disease. Over the next week, I have a series of appointments with the chronic pain clinic which will help me with managing my pain through medicine and lifestyle management. (like the physical therapy I am currently doing)

All in all, we are so encouraged!  We are truly rejoicing in The Lord and are THANKFUL for the LIFE He has given me.


Monday, October 3, 2011

Why Mayo?

So why can't I just stay in Virginia and get my treatment at UVA?

After much prodding from my husband, I put in a request with the Mayo Clinic in Minnesota.  Within four days, they contacted me with an appointment.  My first thought was, "We don't have a dime to do this".  With tears streaming down my face and the phone still by my ear, my husband told me that God would provide...

Well, he was right- God provided!  He has provided the way, a place to stay and a car to drive. 
Without a doubt, I KNOW that God wants me here!

Why choose Mayo Clinic

  • Experience. Mayo Clinic is one of the leading treatment centers for primary biliary cirrhosis in the United States. You benefit from the experience of primary biliary cirrhosis specialists who treat hundreds of people each year.
  • Research advances. You have access to the latest diagnosis and treatment advances at Mayo Clinic, which has been conducting research on primary biliary cirrhosis for more than 40 years. Mayo Clinic researchers have studied many treatments for primary biliary cirrhosis and have made significant contributions to understanding its cause, including finding two gene variations that seem to predispose people to primary biliary cirrhosis. This discovery is the first step toward developing targeted treatments and a cure.
  • Excellence in liver transplants. Mayo Clinic has performed more than 4,500 liver transplants and has some of the highest transplant survival rates in the world. People with primary biliary cirrhosis who receive transplants have particularly high survival rates.
  • Team approach. Liver specialists, radiologists, pathologists and surgeons work together as a team to provide comprehensive and coordinated care for people with primary biliary cirrhosis.